We Are Home!

We have made it home from Du Pont. Everything went as well as we could expect.

The first night that we were there we just hung out in our rooms and relaxed a little bit. It was a long drive there.
Our first appointment was with Dr. McKenzie.
Let me just say that he needs a kid friendly room. You had to wait a least an hour to see him in the doctors office. There are no toys in it. Do you know what that does to a toddler?
We were trying to think of everything we could to keep her entertained. Our patience was growing slim.
Dr. McKenzie thought that Andrea had Hypo. There seemed to be no concerns with her bones at this time. He would like to see her again in 6months for a follow up.
He also gave me the name of a lady that is in LPA that lives close to us. He then took us next door and introduced us to a family that has a 7 year old boy that has hypo. It was nice to meet another family.
We wouldn't discover until the next day that Andrea is not Hypo.

So the next morning we go to see Dr. Bober. As we are waiting to see him in the waiting room. We sit there and here Dr. Bober comes walking down the hall with Dr. Scott.
We shake hands and Dr.Scott leaves. I felt like I was looking at a T.V. star.
We go into the office the same one that is shown on TLC's Kennedy's story.Let's just say it looks bigger on T.V.
But there are toys in there which makes Andrea a happy camper.

Dr. Bober says that him and Dr. Scott have been up all night looking at Andrea's x-rays.
He explains that Andrea does not have Hypo because it is the lower part of her arms and legs that are shorter not the upper parts. Also she has very short and stubby fingers with a trident hand. She has an achon face. Something that is not with the characteristics of Hypo.
They think they have it narrowed down to a catergory.
It is so rare that Dr. Scott has only seen 1 case the whole time that he has been in practice. Dr. Bober showed me an infromational packet and the child looks exactly like Andrea.
We had to take a few more x-rays to complete the set and Dr. Bober sent for the report that was sent to Ceders to the bone dydplsaia study.They aslo sent for her MRI pictures.

We will be anxiously waiting for his report. He too would like to see us again in 6 months.
All in all everything went well.
Dr. Bober gave us a list of the do's and don'ts. No gymnastics ( I already knew that) no trampoline. Watch the neck. Treat her like everyone else.

DR. Bober said something to me that really hit home.
As we were going through our family chart.He was Asking about heights .
I said no they are all "normal". He quickly corrected me and said no they are "average". Everyone is normal. Andrea is "noraml" for herself. Everyone is normal. But as to height we are all just "average". That really hit me.
Andrea is "NORMAL"