Tomorrow morning we will be on our way to Du Pont in Delaware. We are taking Andrea to see the specialists there. It is about a 6 hour drive for us. Our car is not the best so Hollie offered to take us. She is a friend of mine that is a school teacher so she has the summer off. We are hoping to scope out some of the sites that are in that area. Kind of like a girlfriend's getaway with appointment in between. No husbands and only one child. We should have a good time.
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Hey - found your site through Knoah's - praying you get results in at Dupont.
My son has a very rare form of dwarfism - Odontochondrodysplasia - he is only the 13 or 15th( there some debating) known case in the world and the only in the US!! We actually received our diagnosis because our geneticist happens to be "friends" with some skeletal dysplasia experts in Germany who recently helped identify it as it's own dysplasia.
We have talked of going to Dupont for orthepedic reasons - all of our son's long bones are bowed. Looking forward to hearing about your trip.
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