Wednesday, August 27, 2008

Sleepless Night and Missing Mike

For some odd reason last night I just could not get myself to fall asleep.
I tried everything.
Well almost I don't do warm milk. EWW!
I read, watched T.V.,and last but not least I got on the computer. Finally I just went to bed and layed there for about a hour. I still was not asleep. So I got back up and did it all over again. Finally at 2:40 I felt tired enough to go back to bed and lay down.
Now the sad thing is I had to be up at 8:30 this morning to babysit. Man you might as well shoot me for volunteering for this job. I am sure I will feel differently after I get some source of caffeine into my body.

Lastly, I am missing Mike. I haven't seen him since I left for Du Pont. He went to go visit with his dad. Sure it is great that he is getting some daddy time. Especially since his Dad is leaving for Iraq in a few weeks. Well to New Jersy first, then to Mississippi, he will be home for Christmas, and then to Bagdad after that. But the whole time he won't get to see Mike until the Christmas break.
But I miss him. He won't be home till Monday night. I want to call him but I don't want to call all the time. You can tell I am the overprotected mom right?
Do you think that it is to early in the morning to call?
Telling myself :
Hang strong you can make it. YOU CAN MAKE IT!

Saturday, August 23, 2008

We Are Home!

We have made it home from Du Pont. Everything went as well as we could expect.

The first night that we were there we just hung out in our rooms and relaxed a little bit. It was a long drive there.
Our first appointment was with Dr. McKenzie.
Let me just say that he needs a kid friendly room. You had to wait a least an hour to see him in the doctors office. There are no toys in it. Do you know what that does to a toddler?
We were trying to think of everything we could to keep her entertained. Our patience was growing slim.
Dr. McKenzie thought that Andrea had Hypo. There seemed to be no concerns with her bones at this time. He would like to see her again in 6months for a follow up.
He also gave me the name of a lady that is in LPA that lives close to us. He then took us next door and introduced us to a family that has a 7 year old boy that has hypo. It was nice to meet another family.
We wouldn't discover until the next day that Andrea is not Hypo.

So the next morning we go to see Dr. Bober. As we are waiting to see him in the waiting room. We sit there and here Dr. Bober comes walking down the hall with Dr. Scott.
We shake hands and Dr.Scott leaves. I felt like I was looking at a T.V. star.
We go into the office the same one that is shown on TLC's Kennedy's story.Let's just say it looks bigger on T.V.
But there are toys in there which makes Andrea a happy camper.

Dr. Bober says that him and Dr. Scott have been up all night looking at Andrea's x-rays.
He explains that Andrea does not have Hypo because it is the lower part of her arms and legs that are shorter not the upper parts. Also she has very short and stubby fingers with a trident hand. She has an achon face. Something that is not with the characteristics of Hypo.
They think they have it narrowed down to a catergory.
It is so rare that Dr. Scott has only seen 1 case the whole time that he has been in practice. Dr. Bober showed me an infromational packet and the child looks exactly like Andrea.
We had to take a few more x-rays to complete the set and Dr. Bober sent for the report that was sent to Ceders to the bone dydplsaia study.They aslo sent for her MRI pictures.

We will be anxiously waiting for his report. He too would like to see us again in 6 months.
All in all everything went well.
Dr. Bober gave us a list of the do's and don'ts. No gymnastics ( I already knew that) no trampoline. Watch the neck. Treat her like everyone else.

DR. Bober said something to me that really hit home.
As we were going through our family chart.He was Asking about heights .
I said no they are all "normal". He quickly corrected me and said no they are "average". Everyone is normal. Andrea is "noraml" for herself. Everyone is normal. But as to height we are all just "average". That really hit me.
Andrea is "NORMAL"

Wednesday, August 20, 2008

Were out the Door

We are all packed and getting ready to walk out the door. We are waiting on Hollie to come and pick us up. She is one of those friends that you tell we are leaving at 8 so she shows up at 9. lol :)
Hopefully I haven't forgotten to pack everything. I think I packed everything from the potty chair to the portable DVD player.
There is nothing like going into the public restroom with a child that hates the automatic flushes and the hand dryers. She runs for the hills every time.
Ok we have to run. I'll update when we get back on Friday.

Tuesday, August 19, 2008

Packing for Du Pont


Tomorrow morning we will be on our way to Du Pont in Delaware. We are taking Andrea to see the specialists there. It is about a 6 hour drive for us. Our car is not the best so Hollie offered to take us. She is a friend of mine that is a school teacher so she has the summer off. We are hoping to scope out some of the sites that are in that area. Kind of like a girlfriend's getaway with appointment in between. No husbands and only one child. We should have a good time.
We will be close to Philly. There are a lot of historical things to see not to mention shopping. Who loves a good bargain. Oh I do! I do!

So if you think about us tomorrow say a little prayer that we make it there safely and that the Dr.s will have the wisdom when they see Andrea. Pray that we might get some answers about her condition.

Wish us luck,